spinal muscular atrophy Archives • Page 4 of 8 • Ollibean

Struggle over how to evaluate special ed teachers

2012-04-25T08:54:39-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, education, ESE, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

Lynne Sladky / AP In this April 3, 2012, photo,

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RESNA Releases Wheelchair Position Statement

2016-11-10T10:12:12-05:00By Ollibean|Categories: Articles, Assistive Technology, General, Lifestyle|Tags: all disabilities, assistive technology, AT, cerebral palsy, mitochondrial disorders, muscular dystrophies, RESNA, spinal muscular atrophy, wheelchair|

The Rehabilitation Engineering and Assistive Technology Society of North America

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Deaf Olympic hopeful uses social media to fight discrimination

2016-11-10T10:12:12-05:00By Lauri Swann Hunt|Categories: Advocacy, blog, General, Lifestyle|Tags: advocate, all disabilities, all kids, Autism Spectrum Disorders, cerebral palsy, deaf, Food allergies, hearing impairment, inclusion, inclusive, Marcus Titus, mitochondrial disorders, muscular dystrophies, Olympics, rare or undiagnosed disorders, self-advocate, spinal muscular atrophy, USA Swimming|

Marcus Titus, top U.S. breaststroker, rallied for change and got it. USA Swimming will allow the use of hand signals to accomodate Deaf swimmers at the summer Olympic trials.

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Disabled Military Protection Act Allows Military Families to include Special Needs Trusts within the Survivor Benefit Plan

2012-04-22T13:37:22-04:00By Ollibean|Categories: Articles, Editor's Picks, Finances, General, Parenting|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, Disabled Military Protection Act, down syndrome, medically fragile, Military Families, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, special needs trusts, spinal muscular atrophy, supplemental needs trust|

Currently, under the Survivor Benefit Plan (SBP), a military retiree

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Subconscious Stereotyping

2016-11-10T10:12:12-05:00By Cody Lawson|Categories: blog, Cody Lawson, General, Lifestyle, Think Tank|Tags: Aix-Marseille University, all disabilities, all kids, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, discrimination, down syndrome, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy, stereotypes, T21|

When it comes to negative stereotypes, your subconscious may not be the best dinner guest.

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Scoliosis Treatment Might Reduce Need for Surgeries

2012-04-19T13:27:28-04:00By Ollibean|Categories: Articles, Medical|Tags: all disabilities, muscular dystrophies, Orthopedics, scoliosis, spinal muscular atrophy|

THURSDAY, April 19 (HealthDay News) -- Magnetically controlled growing rods

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SchoolBook: Testing Takes Its Toll on Special Needs Students

2012-04-19T18:15:38-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, education, ESE, hearing impairment, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

April 19, 2012, 8:12 a.m. It has been a challenging

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Presuming Competence

2016-11-10T10:12:13-05:00By Amy Sequenzia|Categories: Advocacy, Amy Sequenzia, blog, Editor's Picks, General, Lifestyle, Parenting, Think Tank|Tags: all disabilities, all kids, Amy Sequenzia, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, hearing impairment, learning disabilities, medically complex, mitochondrial disorders, muscular dystrophies, Ollibean Think Tank, presume competence, rare or undiagnosed disorders, self-advocates, spinal muscular atrophy|

This issue is very important to me because so many

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Inclusive education still best model, says advocate

2012-04-19T18:18:52-04:00By Ollibean|Categories: Advocacy, Articles, General, Inclusive Education|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, inclusion, inclusive education, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

Gordon Porter says there are now hundreds of specialized teachers

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The National Center on Accessible Instructional Materials

2013-06-17T14:00:25-04:00By Ollibean|Categories: Inclusive Education, Resources|Tags: Accessibility, all disabilities, all kids, AT, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorders, resources, spinal muscular atrophy, The National Center on Accessible Instructional Materials|

The National Center on Accessible Instructional Materials! This site serves

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Office of Special Education Program’s Discretionary Grants Public Database

2013-06-17T14:18:29-04:00By Ollibean|Categories: Finances, Inclusive Education, Resources|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, Grants, hearing impairment, inclusion, inclusive education, learning disabilities, medically complex, muscular dystrophies, Office of Special Education Program's Discretionary Grants Public Database, Office of Special Education Programs, OSEP, rare or undiagnosed disorders, spinal muscular atrophy|

The Office of Special Education Programs (OSEP) at the U.S.

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Data Accountability Center (DAC)

2016-11-10T10:12:13-05:00By Ollibean|Categories: Advocacy, General, Inclusive Education, Resources|Tags: (DAC), accountability, all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, D.O.E., data, Data Accountability Center, Department of Education, down syndrome, hearing impairment, I.D.E.A., Individuals with Disabilities Education Act, learning disabilities, medically complex, muscular dystrophies, Office of Special Education Programs, OSEP, Part B, Part C, rare or undiagnosed disorder, spinal muscular atrophy|

This website provides public access to data about children and

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Technical Assistance and Dissemination Network

2016-11-10T10:12:13-05:00By Ollibean|Categories: Advocacy, Assistive Technology, General, Inclusive Education, Resources, Therapies|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, Office of Special Education Programs, OSEP, rare or undiagnosed disorder, resources, spinal muscular atrophy, TAD, Technical Assistance and Dissemination Network|

The Technical Assistance and Dissemination Network (or “TA&D Network”) is a network

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Life After IEPs

2016-11-10T10:12:13-05:00By Ollibean|Categories: Advocacy, Editor's Picks, General, Inclusive Education, Lifestyle, Resources|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, Life After IEPs, Mary Mazzoni, medically complex, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy, transition, transitional planning|

Welcome ! If you’re a parent or mentor of

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Stereotypes of Children with Disabilities

2012-04-19T22:33:35-04:00By Ollibean|Categories: Advocacy, Articles, General, Lifestyle|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, PLoS ONE, rare or undiagnosed disorders, spinal muscular atrophy, stereotypes|

Stigmatization is one of the greatest obstacles to the successful

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My Valentine by Paul McCartney- Featuring Natalie Portman and Johnny Depp

2016-11-10T10:12:13-05:00By Ollibean|Categories: ASL Videos, ASL Videos, Deaf and Hard of Hearing, General, Video, Videos|Tags: 'My Valentine', all disabilities, all kids, ASL, ASL videos, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, cross disability, Deaf and Hard of Hearing, down syndrome, hearing impairment, Johnny Depp, medically complex, muscular dystrophies, Natalie Portman, Paul McCartney, rare or undiagnosed disorders, sign language, spinal muscular atrophy|

Paul McCartney Directs His Own 'My Valentine' Videos Featuring Natalie Portman and Johnny Depp using ASL.

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MyVoice AAC

2013-12-30T18:14:26-05:00By Ollibean|Categories: Assistive Technology, Resources, Resources We Love|Tags: AAC, all disabilities, Aphasia, APP, apps, apraxia, Ataxia, augmentative and alternative communication, Autism Spectrum Disorders, cerebral palsy, communication, cross disability, down syndrome, Dysarthria, hearing impairment, muscular dystrophies, My Voice, non verbal, non-speaking, rare or undiagnosed disorders, resource, speech, spinal muscular atrophy, stroke, Traumatic Brain Injury, typing|

MyVoice is a new app, available for Apple and Android

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Teachers Weigh-In: Do We Over Accommodate? Join the Debate…

2012-04-19T22:42:47-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: accomodations, all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, education, ESE, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

Read more as teachers debate accommodations for students. Pete &

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Watching TV: Even Worse for Kids Than You Think

2012-04-19T22:44:57-04:00By Ollibean|Categories: Articles, General, Lifestyle, Medical, Nutrition, Parenting|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, Children's Hospital Boston, developmental disabilities, down syndrome, epilepsy, Food allergies, hearing impairment, medically fragile, mitochondrial disorders, muscular dystrophies, obesity, rare or undiagnosed disorders, spinal muscular atrophy|

It's no secret that sedentary behavior contributes to obesity and

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Faces of Ollibean- We want to hear from you!

2016-11-10T10:12:13-05:00By Ollibean|Categories: Advocacy, blog, Editor's Picks, Featured (Homepage), General, Lifestyle|Tags: all disabilities, all kids, Attention Deficit Disorders, Be the Change, cerebral palsy, down syndrome, epilepsy, Faces of Ollibean, Food allergies, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, spinal muscular atrophy|

Every week we put the spotlight on another person out there making a difference. Share your story and inspire and motivate others to Be the Change.

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Marlo Thomas: The Givers: What Inspires Michael J. Fox? A Very Personal Interview

2012-04-19T22:47:16-04:00By Ollibean|Categories: Advocacy, Articles, Editor's Picks, General, Lifestyle, Parenting|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, epilepsy, Food allergies, hearing impairment, learning disabilities, medically complex, michael j. fox, mitochofrial disorders, mitochondrial disorders, muscular dystrophies, parkinson's disease, rare or undiagnosed disorders, spinal muscular atrophy|

Unbowed by his disease and still exhibiting his trademark energy,

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SEN / ICT

2016-11-10T10:12:13-05:00By Ollibean|Categories: Assistive Technology, General, Inclusive Education, Resources|Tags: all disabilities, all kids, AT, Attention Deficit Disorders, cerebral palsy, directory, down syndrome, epilepsy, Food allergies, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, resource, SEN / ICT, Special Education, spinal muscular atrophy|

The sen / ict directory began life in August 2011

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Planned and On-The-Spot Curriculum Accommodations in the Inclusive Classroom

2016-11-10T10:12:13-05:00By Ollibean|Categories: Assistive Technology, Events, General, Inclusive Education|Tags: 05/07/2012, accomodations, all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, Concord, down syndrome, epilepsy, hearing impairment, inclusion, inclusive classroom, learning disabilities, mary alson, May 7, medically complex, muscular dystrophies, New Hampshire, rare or undiagnosed disorder, rare or undiagnosed disorders, spinal muscular atrophy, UNH/IOD|

The Paraeducator's Toolbox: Practical Strategies to Support Students with Learning and Behavioral Challenges 5.7.2012 9:00 AM - 3:00pm

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Kris’ Camp

2016-11-10T10:12:13-05:00By Ollibean|Categories: Lifestyle, Resources, Therapies|Tags: all disabilities, Arizona, Attention Deficit Disorders, California, camps, cerebral palsy, down syndrome, hearing impairment, Kris' Camp, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, spinal muscular atrophy|

Kris' Camp is a non-profit organization first established in 1995

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AudioBookCloud

2015-02-15T15:49:13-05:00By Ollibean|Categories: Assistive Technology, Inclusive Education, Resources|Tags: all disabilities, all kids, assistive technology. AT resource, AT, Attention Deficit Disorders, AudioBookCloud, Autism Spectrum Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, resource, spinal muscular atrophy, UDL, universal design, universal design for learning|

AudioBookCloud:Your Online Audio Library is an online audio book library

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TumbleBookLibrary

2016-11-10T10:12:13-05:00By Ollibean|Categories: Assistive Technology, General, Inclusive Education, Resources|Tags: all disabilities, all kids, apps, Attention Deficit Disorders, cerebral palsy, down syndrome, ebooks, hearing impairment, ipad, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, reading, resource, resources, spinal muscular atrophy, TumbleBookLibrary|

TumbleBookLibrary is an online collection of TumbleBooks ï¿½ animated, talking

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TumbleReadables

2016-11-10T10:12:14-05:00By Ollibean|Categories: Assistive Technology, Inclusive Education|Tags: all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, spinal muscular atrophy, Tumblereadables|

TumbleReadables is an online collection of read-along titles for elementary, middle

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Fit Kids Playground

2013-06-17T14:20:41-04:00By Ollibean|Categories: Entertainment, Lifestyle, Parenting, Resources|Tags: all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, down syndrome, epilepsy, Fit Kids Playground, Florida, Food allergies, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, resources, spinal muscular atrophy, Tampa|

Our mission is to decrease the burden of childhood obesity

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Love and Logic ®

2013-06-17T14:21:20-04:00By Ollibean|Categories: General, Parenting, Resources, Uncategorized|Tags: all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, down syndrome, epilepsy, Food allergies, hearing impairment, learning disabilities, Love and Logic ®, medically complex, muscular dystrophies, parenting, parenting resource, parenting resources, rare or undiagnosed disorder, spinal muscular atrophy|

What Is Love and Logic All About? The Love and

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OlliNEPAL at the SERC School

2016-11-10T10:12:14-05:00By Ollibean|Categories: blog, Editor's Picks, Featured (Homepage), General, Lifestyle, Think Tank, Video|Tags: all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, Disability, down syndrome, hearing impairment, inclusion, Kathmandu, learning disabilities, medically complex, muscular dystrophies, Nepal, Ollibean, OlliNepal, physical therapy, rare or undiagnosed disorder, SERC, special needs, spinal muscular atrophy, volunteer|

OlliNEPAL at the SERC School in Kathmandu

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OlliNEPAL team at HDCS, Asha Bal Bikash Sewa (“Children’s Hope Development Service”)

2016-11-10T10:12:14-05:00By Ollibean|Categories: blog, Think Tank, Video|Tags: all disabilities, all kids, Asha Bal Bikash Sewa, Attention Deficit Disorders, cerebral palsy, Children’s Hope Development Service, Disability, down syndrome, HCDS, HDCS, hearing impairment, inclusion, Kathmandu, learning disabilities, medically complex, muscular dystrophies, Nepal, Ollibean, OlliNepal, rare or undiagnosed disorder, special needs, spinal muscular atrophy, Tulsa Sharma|

OlliNEPAL team at HDCS, Asha Bal Bikash Sewa ("Children's Hope Development Service")

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Asha Bal Bikash Sewa (“Children’s Hope Development Service”)

2013-06-17T14:21:53-04:00By Ollibean|Categories: Inclusive Education, Resources|Tags: all disabilities, all kids, Asha Bal Bikash Sewa, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, Children’s Hope Development Service, down syndrome, HDSC, hearing impairment, learning disabilities, medically complex, muscular dystrophies, Nepal, OlliNepal, rare or undiagnosed disorder, spinal muscular atrophy|

Asha Bal Bikash Sewa (“ABBS”) is a day care ministry

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