spinal muscular atrophy Archives • Page 8 of 8 • Ollibean

“The Genetics of SMA” Translated into Spanish.

2012-02-23T17:26:02-05:00By Ollibean|Categories: Articles, General|Tags: spinal muscular atrophy|

Families of Spinal Muscular Atrophy Releases “The Genetics of SMA”

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Institute on Communication and Inclusion

2013-12-30T19:31:50-05:00By Ollibean|Categories: Advocacy, Assistive Technology, General, Inclusive Education, Resources, Resources We Love|Tags: AAC, advocacy, advocacy resources, all disabilities, Attention Deficit Disorders, augmentative and alternative communication, Augmentative Communication, Autism Spectrum Disorders, cerebral palsy, cross disability, Deaf Hard of Hearing, developmental disabilities, DOE, down syndrome, epilepsy, FC, hearing impairment, inclusion, inclusion resources, ipad, mitochondrial disorders, muscular dystrophies, non-speaking, politics, rare or undiagnosed disorders, resource we love, resourcepolitics/rights, resources, self-advocacy, spinal muscular atrophy, support, supported typing, Wretches & Jabberers|

The Institute on Communication and Inclusion (ICI) is a research

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Kit( Kids Included Together)

2015-10-28T22:43:13-04:00By Ollibean|Categories: blog, General, Inclusion Resources, Inclusive Education, Resources, Resources We Love|Tags: advocacy, advocacy resources, all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, cross disability, Deaf Hard of Hearing, developmental disabilities, DOE, down syndrome, epilepsy, hearing impairment, inclusion, inclusion resource, inclusion resources, kids included together, KIT, muscular dystrophies, rare or undiagnosed disorders, resource, resource we love, resources, spinal muscular atrophy, Torrie Dunlap|

Kids Included Together (KIT) specializes in providing best practices training

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National Arts and Disability Center

2013-06-17T16:22:05-04:00By Ollibean|Categories: Entertainment, General, Inclusive Education, Lifestyle, Resources|Tags: advocacy, all disabilities, art, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, medically complex, mitochondrial disorders, muscular dystrophies, politics, rare or undiagnosed disorder, rare or undiagnosed disorders, resources, self-advocacy, spinal muscular atrophy|

The National Arts and Disability Center (NADC) is a project

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Muscular Dystrophy Association

2017-01-23T12:36:58-05:00By Ollibean|Categories: Resources|Tags: duchenne muscular dystrophy, MDA, muscular dystrophies, muscular dystrophy, Muscular Dystrophy Association, resources, spinal muscular atrophy|

The Muscular Dystrophy Association, MDA http://www.mda.org/ MDA is the

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Disability.gov

2013-06-17T16:23:45-04:00By Ollibean|Categories: Advocacy, General, Politics, Resources|Tags: advocacy, advocacy resources, all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, Deaf Hard of Hearing, developmental disabilities, Disability, DOE, down syndrome, epilepsy, hearing impairment, inclusion, inclusion resources, medically complex, mitochondrial disorders, muscular dystrophies, politics, politics/rights, rare or undiagnosed disorder, rare or undiagnosed disorders, resources, self-advocacy, spinal muscular atrophy|

Disability.gov is a federal government website that provides an interactive,

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TASH- Disability Advocacy Worldwide

2013-12-30T19:33:56-05:00By Ollibean|Categories: Advocacy, Disability Rights, General, Inclusive Education, Politics, Resources, Resources We Love|Tags: advocacy, advocacy resources, all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, cross disability, Deaf Hard of Hearing, developmental disabilities, DOE, down syndrome, epilepsy, hearing impairment, inclusion, inclusion resources, muscular dystrophies, rare or undiagnosed disorders, resource, resource we love, resources, spinal muscular atrophy, TASH|

TASH is an international leader in disability advocacy. Founded in

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Council for Exceptional Children

2013-12-30T19:34:36-05:00By Ollibean|Categories: Advocacy, General, Inclusive Education, Resources, Resources We Love|Tags: advocacy, advocacy resources, all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, CEC, cerebral palsy, Council for Exceptional Children, cross disability, Deaf Hard of Hearing, developmental disabilities, DOE, down syndrome, education resources, epilepsy, hearing impairment, inclusion, inclusion resources, muscular dystrophies, rare or undiagnosed disorders, resource, resources, spinal muscular atrophy|

The Council for Exceptional Children is an international community of

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The Council on Quality and Leadership

2016-11-10T10:12:25-05:00By Ollibean|Categories: Advocacy, General, Resources|Tags: advocacy, advocacy resources, all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, Deaf Hard of Hearing, developmental disabilities, DOE, down syndrome, epilepsy, hearing impairment, inclusion, inclusion resources, muscular dystrophies, rare or undiagnosed disorders, resources, spinal muscular atrophy, The Council on Quality and Leadership|

The Council on Quality and Leadership is leader for person-centered

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Consortium for Citizens with Disabilities

2016-11-10T10:12:25-05:00By Ollibean|Categories: Advocacy, General, Politics, Resources|Tags: advocacy, advocacy resources, all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, Consortium for Citizens with Disabilities, Deaf Hard of Hearing, developmental disabilities, DOE, down syndrome, epilepsy, hearing impairment, inclusion, inclusion resources, muscular dystrophies, rare or undiagnosed disorders, resources, spinal muscular atrophy|

The Consortium for Citizens with Disabilities is a coalition of

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Best Buddies International

2016-11-10T10:12:25-05:00By Ollibean|Categories: Entertainment, General, Lifestyle, Resources|Tags: advocacy, all disabilities, Autism Spectrum Disorders, Best Buddies, cerebral palsy, developmental disabilities, down syndrome, medically complex, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorder, rare or undiagnosed disorders, self-advocacy, spinal muscular atrophy, Spread the Word to End the Word|

Best Buddies is a nonprofit 501(c)(3) organization dedicated to establishing

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Benefits.gov

2013-06-17T16:27:40-04:00By Ollibean|Categories: Advocacy, Finances, General, Politics, Resources|Tags: all disabilities, Autism Spectrum Disorders, Benefits.gov, cerebral palsy, developmental disabilities, down syndrome, government resources, medically complex, mitochondrial disorders, muscular dystrophies, politics, politics/rights, rare or undiagnosed disorder, rare or undiagnosed disorders, resources, self-advocacy, spinal muscular atrophy|

Benefits.gov (formerly GovBenefits.gov) was launched in an effort to provide

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Association of Assistive Technology Act Programs

2016-11-10T10:12:25-05:00By Ollibean|Categories: Assistive Technology, General, Resources, Therapies|Tags: all disabilities, assistive technology, AT resources, augmentative and alternative communication, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, ipad, medically complex, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorder, resources, spinal muscular atrophy|

The Association of Assistive Technology Act Programs (ATAP) is a

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ADA Portal

2013-06-17T16:29:39-04:00By Ollibean|Categories: Advocacy, General, Politics, Resources|Tags: ADA, advocacy, advocacy resources, all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, Deaf Hard of Hearing, developmental disabilities, disabilities, DOE, down syndrome, epilepsy, hearing impairment, inclusion, inclusion resources, medically complex, mitochondrial disorders, muscular dystrophies, politics, politics/rights, rare or undiagnosed disorder, rare or undiagnosed disorders, resources, self-advocacy, self-advocates, spinal muscular atrophy|

The ADA Document Portal Allows users to search a collection

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American Association of People with Disabilities

2013-06-17T16:30:05-04:00By Ollibean|Categories: Advocacy, General, Politics, Resources|Tags: AAPD, advocacy, advocacy resources, all disabilities, American Association of People with Disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, Deaf Hard of Hearing, developmental disabilities, DOE, down syndrome, epilepsy, hearing impairment, inclusion, inclusion resources, muscular dystrophies, rare or undiagnosed disorders, resources, spinal muscular atrophy|

The American Association of People with Disabilities is the nation's

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From Skin Cells to Motor Neurons

2011-12-17T00:16:47-05:00By Ollibean|Categories: Articles|Tags: ALS, amyotrophic lateral sclerosis, induced motor neurons, Motor Neurons, neuromuscular disorders, SMA, spinal muscular atrophy, treatment|

HARVARD GAZETTE Harvard researchers have succeeded in reprogramming adult mouse

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Student Software Opens World For Motion Impaired

2017-01-23T12:12:56-05:00By Ollibean|Categories: Articles|Tags: assistive technology, boston college, camera mouse, cerebral palsy, muscular dystrophies, Rick Hoyt, spinal muscular atrophy|

49-year-old Rick Hoyt has cerebral palsy and communicates using

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Thank You, Steve Jobs

2016-11-10T10:12:28-05:00By Lauri Swann Hunt|Categories: Assistive Technology, blog, General, Inclusive Education, Lifestyle|Tags: AAC, all disabilities, all kids, apple, AT, augmentative and alternative communication, Autism Spectrum Disorders, cerebral palsy, Deaf and Hard of Hearing, down syndrome, epilepsy, hearing impairment, Hearing Loss, medically complex, muscular dystrophies, rare or undiagnosed disorder, special needs, spinal muscular atrophy, steve jobs|

Thank you Steve Jobs for thinking differently so that so

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Wretches & Jabberers Tampa Screening

2016-11-10T10:12:28-05:00By Ollibean|Categories: Advocacy, Events, Featured (Homepage), General, Inclusive Education, Lifestyle, Parenting|Tags: acceptance, advocacy, all disabilities, all kids, autism, Autism Spectrum Disorders, cerebral palsy, Disability, documentary, down syndrome, Foundation for Mitochondrial Medicine I Stand With Henry, Gerardine Wurzburg, Harvey Lavoy, inclusion, Larry Bissonette, medically complex, muscular dystrophies, Ollibean, Ollibean Art for Change, Pascal Cheng, rare or undiagnosed disorders, self-advocacy, self-advocates, spinal muscular atrophy, Tampa, Tampa Theatre, the foundation for mitochondrial medicine, Tracy Thresher, Wretches & Jabberers|

The " World Intelligence Magnified Tour" took Tampa by storm. The screenings of Wretches & Jabberers the weekend of June 10 were an enormous success.

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U.S. Secretary Duncan on Exceptional Ed

2016-11-10T10:12:29-05:00By Ollibean|Categories: General, Inclusive Education, Politics, Video|Tags: all disabilities, Arne Duncan, Autism Spectrum Disorders, cross disability, Disability, down syndrome, inclusion, medical professional, medically complex, muscular dystrophies, rare or undiagnosed disorder, special educatio, Special Education, special needs, spinal muscular atrophy|

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A Few of Our Favorite Things

2016-11-10T10:12:29-05:00By Ollibean|Categories: Assistive Technology, blog, General, Parenting, Therapies|Tags: AAC, all kids, assisitive technology, Attention Deficit Disorders, augmentative communication device, Canine Companions for Independence, cerebral palsy, down syndrome, epilepsy, Food allergies, hearing impairment, ipad, learning disabilities, medically complex, muscular dystrophies, proloquo2go, rare or undiagnosed disorder, spinal muscular atrophy, squag, TheraSuit|

There are so many products, doctors, therapies, and places out there that can help. Here's a list of some of our favorites. We'd love to know what your Favorites are and why. Shoot us an email at olli@ollibean.com and spread the love.

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