medically complex Archives • Ollibean

Ollibean: All of a kind

2016-11-10T10:12:02-05:00By Ollibean|Categories: blog, Editor's Picks, Featured (Homepage), General, Lifestyle, Think Tank, Video|Tags: advocacy, all disabilities, all kids, allofakind, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, epilepsy, Faces of Ollibean, hearing impairment, inclusion, learning disabilities, medically complex, muscular dystrophies, Ollibean, Ollibean Spotlight, rare or undiagnosed disorder, spinal muscular atrophy|

The faces of Ollibean are kids with and without disabilities all trying to make the world a better place.

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A Sensory Garden for Zoë and Oliver

A Sensory Garden for Zoë and Oliver

2016-11-10T10:12:06-05:00By Ollibean|Categories: blog, Editor's Picks, Featured (Homepage), General, Lifestyle, Parenting, Think Tank|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, Bloom, Bloom Garden Shop, cerebral palsy, down syndrome, epilepsy, Food allergies, gardening, hearing impairment, Julie Lohoefener, kids, learning disabilities, medically complex, muscular dystrophies, Ollibean Contributor, rare or undiagnosed disorders, sensory garden, Sensory processing disorders, SPD, spinal muscular atrophy|

One of Ollibean's contributors, the lovely and amazing, Julie Lohoefener of Bloom Garden Shop, let's us in on some great tips on creating a non-toxic Sensory Garden with your kids.

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Snacking: The Little Bite That Won’t Hurt You

2016-11-10T10:12:07-05:00By Kristie Salzer|Categories: blog, Editor's Picks, Featured (Homepage), General, Nutrition, Think Tank|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, epilepsy, Food allergies, hearing impairment, Kristie Salzer, learning disabilities, medically complex, muscular dystrophies, nutrition, rare or undiagnosed disorders, Salzer Nurtrition, snacking, spinal muscular atrophy|

Ollibean contributor Kristie Salzer talks about the benefits of "refueling" between lunch and dinner to decrease hunger related meltdowns for kids. We love her suggestions of 25 super easy snacks to get you started!

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Facebook blocks NC mom’s pictures of Special Olympics event

2016-11-10T10:12:12-05:00By Ollibean|Categories: Advocacy, blog, Editor's Picks, General, Lifestyle, Parenting, Think Tank|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorder, cerebral palsy, developmental disability, down syndrome, Facebook, hearing impairment, learning disabilities, medically complex, Mitochondrial Disorder, muscular dystrophies, rare or undiagnosed disorder, special olympics, spinal muscular atrophy|

Diane Cornwell said her seven year old, Cole, who happens to have Down Syndrome had a great time at his first Special Olympics event last Friday. She uploaded an album of 40 pictures to share and says Facebook blocked it for inappropriate content and locked her account.

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Presuming Competence

2016-11-10T10:12:13-05:00By Amy Sequenzia|Categories: Advocacy, Amy Sequenzia, blog, Editor's Picks, General, Lifestyle, Parenting, Think Tank|Tags: all disabilities, all kids, Amy Sequenzia, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, hearing impairment, learning disabilities, medically complex, mitochondrial disorders, muscular dystrophies, Ollibean Think Tank, presume competence, rare or undiagnosed disorders, self-advocates, spinal muscular atrophy|

This issue is very important to me because so many

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The National Center on Accessible Instructional Materials

2013-06-17T14:00:25-04:00By Ollibean|Categories: Inclusive Education, Resources|Tags: Accessibility, all disabilities, all kids, AT, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorders, resources, spinal muscular atrophy, The National Center on Accessible Instructional Materials|

The National Center on Accessible Instructional Materials! This site serves

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Office of Special Education Program’s Discretionary Grants Public Database

2013-06-17T14:18:29-04:00By Ollibean|Categories: Finances, Inclusive Education, Resources|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, Grants, hearing impairment, inclusion, inclusive education, learning disabilities, medically complex, muscular dystrophies, Office of Special Education Program's Discretionary Grants Public Database, Office of Special Education Programs, OSEP, rare or undiagnosed disorders, spinal muscular atrophy|

The Office of Special Education Programs (OSEP) at the U.S.

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Data Accountability Center (DAC)

2016-11-10T10:12:13-05:00By Ollibean|Categories: Advocacy, General, Inclusive Education, Resources|Tags: (DAC), accountability, all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, D.O.E., data, Data Accountability Center, Department of Education, down syndrome, hearing impairment, I.D.E.A., Individuals with Disabilities Education Act, learning disabilities, medically complex, muscular dystrophies, Office of Special Education Programs, OSEP, Part B, Part C, rare or undiagnosed disorder, spinal muscular atrophy|

This website provides public access to data about children and

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Technical Assistance and Dissemination Network

2016-11-10T10:12:13-05:00By Ollibean|Categories: Advocacy, Assistive Technology, General, Inclusive Education, Resources, Therapies|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, Office of Special Education Programs, OSEP, rare or undiagnosed disorder, resources, spinal muscular atrophy, TAD, Technical Assistance and Dissemination Network|

The Technical Assistance and Dissemination Network (or “TA&D Network”) is a network

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Life After IEPs

2016-11-10T10:12:13-05:00By Ollibean|Categories: Advocacy, Editor's Picks, General, Inclusive Education, Lifestyle, Resources|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, Life After IEPs, Mary Mazzoni, medically complex, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy, transition, transitional planning|

Welcome ! If you’re a parent or mentor of

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Stereotypes of Children with Disabilities

2012-04-19T22:33:35-04:00By Ollibean|Categories: Advocacy, Articles, General, Lifestyle|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, PLoS ONE, rare or undiagnosed disorders, spinal muscular atrophy, stereotypes|

Stigmatization is one of the greatest obstacles to the successful

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My Valentine by Paul McCartney- Featuring Natalie Portman and Johnny Depp

2016-11-10T10:12:13-05:00By Ollibean|Categories: ASL Videos, ASL Videos, Deaf and Hard of Hearing, General, Video, Videos|Tags: 'My Valentine', all disabilities, all kids, ASL, ASL videos, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, cross disability, Deaf and Hard of Hearing, down syndrome, hearing impairment, Johnny Depp, medically complex, muscular dystrophies, Natalie Portman, Paul McCartney, rare or undiagnosed disorders, sign language, spinal muscular atrophy|

Paul McCartney Directs His Own 'My Valentine' Videos Featuring Natalie Portman and Johnny Depp using ASL.

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Faces of Ollibean- We want to hear from you!

2016-11-10T10:12:13-05:00By Ollibean|Categories: Advocacy, blog, Editor's Picks, Featured (Homepage), General, Lifestyle|Tags: all disabilities, all kids, Attention Deficit Disorders, Be the Change, cerebral palsy, down syndrome, epilepsy, Faces of Ollibean, Food allergies, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, spinal muscular atrophy|

Every week we put the spotlight on another person out there making a difference. Share your story and inspire and motivate others to Be the Change.

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Marlo Thomas: The Givers: What Inspires Michael J. Fox? A Very Personal Interview

2012-04-19T22:47:16-04:00By Ollibean|Categories: Advocacy, Articles, Editor's Picks, General, Lifestyle, Parenting|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, epilepsy, Food allergies, hearing impairment, learning disabilities, medically complex, michael j. fox, mitochofrial disorders, mitochondrial disorders, muscular dystrophies, parkinson's disease, rare or undiagnosed disorders, spinal muscular atrophy|

Unbowed by his disease and still exhibiting his trademark energy,

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SEN / ICT

2016-11-10T10:12:13-05:00By Ollibean|Categories: Assistive Technology, General, Inclusive Education, Resources|Tags: all disabilities, all kids, AT, Attention Deficit Disorders, cerebral palsy, directory, down syndrome, epilepsy, Food allergies, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, resource, SEN / ICT, Special Education, spinal muscular atrophy|

The sen / ict directory began life in August 2011

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Planned and On-The-Spot Curriculum Accommodations in the Inclusive Classroom

2016-11-10T10:12:13-05:00By Ollibean|Categories: Assistive Technology, Events, General, Inclusive Education|Tags: 05/07/2012, accomodations, all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, Concord, down syndrome, epilepsy, hearing impairment, inclusion, inclusive classroom, learning disabilities, mary alson, May 7, medically complex, muscular dystrophies, New Hampshire, rare or undiagnosed disorder, rare or undiagnosed disorders, spinal muscular atrophy, UNH/IOD|

The Paraeducator's Toolbox: Practical Strategies to Support Students with Learning and Behavioral Challenges 5.7.2012 9:00 AM - 3:00pm

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Kris’ Camp

2016-11-10T10:12:13-05:00By Ollibean|Categories: Lifestyle, Resources, Therapies|Tags: all disabilities, Arizona, Attention Deficit Disorders, California, camps, cerebral palsy, down syndrome, hearing impairment, Kris' Camp, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, spinal muscular atrophy|

Kris' Camp is a non-profit organization first established in 1995

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AudioBookCloud

2015-02-15T15:49:13-05:00By Ollibean|Categories: Assistive Technology, Inclusive Education, Resources|Tags: all disabilities, all kids, assistive technology. AT resource, AT, Attention Deficit Disorders, AudioBookCloud, Autism Spectrum Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, resource, spinal muscular atrophy, UDL, universal design, universal design for learning|

AudioBookCloud:Your Online Audio Library is an online audio book library

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TumbleBookLibrary

2016-11-10T10:12:13-05:00By Ollibean|Categories: Assistive Technology, General, Inclusive Education, Resources|Tags: all disabilities, all kids, apps, Attention Deficit Disorders, cerebral palsy, down syndrome, ebooks, hearing impairment, ipad, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, reading, resource, resources, spinal muscular atrophy, TumbleBookLibrary|

TumbleBookLibrary is an online collection of TumbleBooks ï¿½ animated, talking

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TumbleReadables

2016-11-10T10:12:14-05:00By Ollibean|Categories: Assistive Technology, Inclusive Education|Tags: all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, spinal muscular atrophy, Tumblereadables|

TumbleReadables is an online collection of read-along titles for elementary, middle

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Fit Kids Playground

2013-06-17T14:20:41-04:00By Ollibean|Categories: Entertainment, Lifestyle, Parenting, Resources|Tags: all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, down syndrome, epilepsy, Fit Kids Playground, Florida, Food allergies, hearing impairment, learning disabilities, medically complex, muscular dystrophies, rare or undiagnosed disorder, resources, spinal muscular atrophy, Tampa|

Our mission is to decrease the burden of childhood obesity

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Love and Logic ®

2013-06-17T14:21:20-04:00By Ollibean|Categories: General, Parenting, Resources, Uncategorized|Tags: all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, down syndrome, epilepsy, Food allergies, hearing impairment, learning disabilities, Love and Logic ®, medically complex, muscular dystrophies, parenting, parenting resource, parenting resources, rare or undiagnosed disorder, spinal muscular atrophy|

What Is Love and Logic All About? The Love and

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OlliNEPAL at the SERC School

2016-11-10T10:12:14-05:00By Ollibean|Categories: blog, Editor's Picks, Featured (Homepage), General, Lifestyle, Think Tank, Video|Tags: all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, Disability, down syndrome, hearing impairment, inclusion, Kathmandu, learning disabilities, medically complex, muscular dystrophies, Nepal, Ollibean, OlliNepal, physical therapy, rare or undiagnosed disorder, SERC, special needs, spinal muscular atrophy, volunteer|

OlliNEPAL at the SERC School in Kathmandu

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OlliNEPAL team at HDCS, Asha Bal Bikash Sewa (“Children’s Hope Development Service”)

2016-11-10T10:12:14-05:00By Ollibean|Categories: blog, Think Tank, Video|Tags: all disabilities, all kids, Asha Bal Bikash Sewa, Attention Deficit Disorders, cerebral palsy, Children’s Hope Development Service, Disability, down syndrome, HCDS, HDCS, hearing impairment, inclusion, Kathmandu, learning disabilities, medically complex, muscular dystrophies, Nepal, Ollibean, OlliNepal, rare or undiagnosed disorder, special needs, spinal muscular atrophy, Tulsa Sharma|

OlliNEPAL team at HDCS, Asha Bal Bikash Sewa ("Children's Hope Development Service")

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Asha Bal Bikash Sewa (“Children’s Hope Development Service”)

2013-06-17T14:21:53-04:00By Ollibean|Categories: Inclusive Education, Resources|Tags: all disabilities, all kids, Asha Bal Bikash Sewa, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, Children’s Hope Development Service, down syndrome, HDSC, hearing impairment, learning disabilities, medically complex, muscular dystrophies, Nepal, OlliNepal, rare or undiagnosed disorder, spinal muscular atrophy|

Asha Bal Bikash Sewa (“ABBS”) is a day care ministry

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Kanti Children’s Hospital

2016-11-10T10:12:14-05:00By Ollibean|Categories: General, Medical, Resources, Therapies|Tags: Alexis Clarkson, all disabilities, all kids, Attention Deficit Disorders, cerebral palsy, down syndrome, hearing impairment, Kanti Children's Hospital, learning disabilities, medically complex, muscular dystrophies, Nepal, OlliNepal, physical therapy, rare or undiagnosed disorder, spinal muscular atrophy|

MISSION To realize the vision, the Board has established its

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Special Education and Rehabilitation Center for Disabled Children (SERC)

2016-11-10T10:12:14-05:00By Ollibean|Categories: Advocacy, Assistive Technology, Inclusive Education, Medical, Resources|Tags: Alexis Clarkson, all disabilities, all kids, Autism Spectrum Disorders, cerebral palsy, down syndrome, hearing impairment, learning disabilities, medically complex, muscular dystrophies, OlliNepal, physical therapy, rare or undiagnosed disorder, SERC, spinal muscular atrophy|

Established in 2009, and located in a peaceful neighborhood of

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Parents charged in death of Texas boy, 10

2012-04-07T16:59:53-04:00By Ollibean|Categories: Articles, General|Tags: all disabilities, all kids, ataxic cerebral palsy, Attention Deficit Disorders, cerebral palsy, cp, down syndrome, hearing impairment, learning disabilities, medically complex, murder, muscular dystrophies, parents, rare or undiagnosed disorder, spinal muscular atrophy|

TEXAS CITY, Texas, April 5 (UPI) -- The parents of

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Dysphagia (Swallowing Problems)

2012-04-04T08:33:00-04:00By Ollibean|Categories: Articles, General, Medical|Tags: all disabilities, Becker Muscular dystrophy, duchenne muscular dystrophy, dysphagia, limb-girdle muscular dystrophy, medically complex, medically fragile, mitochondrial disorders, muscular dystrophies, muscular dystrophy, myotonic dystrophy, rare or undiagnosed disorders|

Melissa Conrad Stöppler, MD, is a U.S. board-certified Anatomic Pathologist

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School bans disabled girl from using walker

2012-03-30T17:03:02-04:00By Ollibean|Categories: Advocacy, Articles, Editor's Picks, General, Medical, Parenting|Tags: advocacy, all disabilities, ataxic cerebral palsy, cerebral palsy, cp, developmental disabilities, epilepsy, IDEA, inclusion, Individuals with Disabilities Education Act, medically complex, medically fragile, wheelchair|

Kristi Roberts was stunned when school officials insisted that her

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OlliNepal Update – March 29

2016-11-10T10:12:16-05:00By Russ Hunt|Categories: Advocacy, Assistive Technology, blog, General, Inclusive Education, Lifestyle, Nutrition, Therapies|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, down syndrome, epilepsy, Food allergies, hearing impairment, Kanti Children's Hospital, learning disabilities, medically complex, muscular dystrophies, OLE Nepal, OlliNepal, rare or undiagnosed disorder, spinal muscular atrophy|

The Ollibean/OlliNepal team finished up their trekking outside of Pohkara,

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Ollibean Team Arrives in Nepal

2016-11-10T10:12:16-05:00By Ollibean|Categories: Advocacy, blog, General, Lifestyle|Tags: all disabilities, all kids, allofakind, Attention Deficit Disorders, cerebral palsy, down syndrome, epilepsy, Food allergies, hearing impairment, inclusion, inlcusion, learning disabilities, medically complex, muscular dystrophies, Nepal, OlliNepal, rare or undiagnosed disorder, spinal muscular atrophy|

The adventure begins! Beautiful start ! Greeted at Nepalese Airport by longtime friend, Topden Lama. Topden brought Tibetan scarves for the group

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