muscular dystrophies Archives • Page 3 of 8 • Ollibean

Florida Alliance for Assistive Services and Technology ( FAAST)

2013-06-17T13:55:54-04:00By Ollibean|Categories: Advocacy, Assistive Technology, General, Resources|Tags: AAC, all disabilities, all disabilities, Amy Sequenzia, AT resources, augmentative and alternative communication, Autism Spectrum Disorders, cerebral palsy, communication, developmental disabilities, down syndrome, Florida, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, resources, technology|

About FAAST Our Mission is to improve the quality of life

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Bullying Prevention State Laws

2015-02-16T08:37:48-05:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, bullying, Bullying Prevention, Bullying Prevention State Laws, cerebral palsy, developmental disabilities, down syndrome, epilepsy, hearing impairment, IEP, Individualized Education Plan, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, special needs, spinal muscular atrophy, state laws|

This new brief focuses on bullying prevention legislation. To date,

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Perfect Ballet Slippers from Linge Shoes

2016-11-10T10:12:10-05:00By Lauri Swann Hunt|Categories: Author, blog, General, Lauri Swann Hunt, Lifestyle|Tags: all disabilities, ballet slippers, cross disability, design, Linge Shoes, muscular dystrophies, products we love, shoes, spinal muscular atrophy, things we love, Whitney Evans|

We are obsessed with these ballet slippers from Linge Shoes. We get the skinny from designer/entrepreneur Whitney Evans about her exquisite shoes- perfect for moms and daughters alike.

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Strong communication between brain and muscle requires both having the protein LRP4

2012-07-13T08:25:35-04:00By Ollibean|Categories: Articles, General, Medical|Tags: Becker Muscular dystrophy, duchenne muscular dystrophy, limb-girdle muscular dystrophy, LRP4, muscular dystrophies, myotonic dystrophy|

Communication between the brain and muscle must be strong for

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Leaders@ED: Alexa Posny, Assistant Secretary for Special Education and Rehabilitative Services

2012-07-13T08:26:38-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: Alexa Posny, all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, education, ESE, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

Alexa Posny has had 23 jobs. While she never envisioned

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Change Leader: Dr. Charles Price

Change Leader: Dr. Charles Price

2016-11-10T10:12:10-05:00By Lauri Swann Hunt|Categories: blog, Editor's Picks, General, Lifestyle, Ollibean Thought Leaders|Tags: all disabilities, Autism Spectrum Disorders, Can You Feel It in Your Bones, Dr Chad Price, Dr Charles Price, hip dysplasia, International Hip Dysplasia Institute, muscular dystrophies, Ollibean Change Leaders, Orthopedics, pediatric orthopedic surgeon, rare or undiagnosed disorders|

If you could change one thing about the world, what would it be? "More acceptance, tolerance and understanding. Everyone is trying to get through life the best way they know how. Some are dysfunctional while others are externally successful. Not everything is as it seems on the surface".

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International Hip Dysplasia Institute

2016-11-10T10:12:11-05:00By Ollibean|Categories: General, Medical, Resources|Tags: all disabilities, cerebral palsy, down syndrome, International Hip Dysplasia Institute. spinal muscular atrophy, muscular dystrophies|

The International Hip Dysplasia Institute (IHDI) is a collaborative, international,

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A Letter to Parents of Children with Special Needs

2012-07-05T13:36:06-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, epilepsy, hearing impairment, IEP, Individualized Education Plan, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy, The Inclusive Class|

I hope you have an enjoyable and relaxing summer with

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Introducing Ollibean Think Tank Member Nicole Eredics

Introducing Ollibean Think Tank Member Nicole Eredics

2016-11-10T10:12:11-05:00By Lauri Swann Hunt|Categories: Author, blog, General, Inclusive Education, Lauri Swann Hunt, Nicole Eredics, Think Tank|Tags: all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, blind, cerebral palsy, developmental disabilities, hearing impairment, inclusion, inclusive education, mitochondrial disorders, muscular dystrophies, Nicole Eredics, Ollibean Think Tank, podcasts, rare or undiagnosed disorders, spinal muscular strophy, teaching, The Inclusive Class|

We are very proud to introduce Ollibean Think Tank member, Nicole

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Special-Ed Students at Greater Risk of Bullying, Being Bullied: Study

2012-07-05T18:05:03-04:00By Ollibean|Categories: Articles, General, Inclusive Education, Parenting|Tags: all disabilities, Autism Spectrum Disorders, bullying, cerebral palsy, developmental disabilities, down syndrome, education, ESE, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

TUESDAY, July 3 (HealthDay News) -- Students with visible disabilities

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Jedd Hafer of Love and Logic ® answers your parenting questions

Jedd Hafer of Love and Logic ® answers your parenting questions

2016-11-10T10:12:11-05:00By Lauri Swann Hunt|Categories: blog, Editor's Picks, General, Lifestyle, Parenting, Think Tank|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, Food allergies, hearing impairment, Jedd Hafer, Love and Logic ®, mitochondrial disorders, muscular dystrophies, parenting, rare or undiagnosed disorders, special needs, spinal muscular atrophy, visual impairment|

We recently had the pleasure of speaking with Jedd Hafer, of Love & Logic® and asked him some of our questions. Jed's one of those people that you start talking to and feel like you've known him forever.

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Introducing Ollibean Change Leaders

2016-11-10T10:12:11-05:00By Ollibean|Categories: blog, Editor's Picks, Featured (Homepage), Think Tank|Tags: advocacy, all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, change, developmental disabilities, down syndrome, Food allergies, hearing impairment, mitochondrial disorders, muscular dystrophies, Ollibean Change Leaders, rare or undiagnosed disorders, spinal muscular atrophy, visual impairment|

Introducing Ollibean Change Leaders - comprised of the most innovative,

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National Council on Disability (NCD) Honors Life of Justin Dart

2012-06-23T10:56:44-04:00By Ollibean|Categories: Advocacy, Articles, General, Politics|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, disability rights, down syndrome, hearing impairment, Justin Dart, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

Listen to the heart of this old soldier. As with

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U.S. Department of Education Announces New Awards in Technology and Media Services

2012-06-14T09:23:50-04:00By Ollibean|Categories: Articles, Assistive Technology|Tags: all disabilities, assistive technology, AT, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

The U.S. Department of Education’s Office of Special Education Programs

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Stop IDEA Funding Cuts!

2012-05-31T10:22:23-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, hearing impairment, IDEA, Individuals with Disabilities Education Act, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

There could be some big changes awaiting you during the

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Science-Based Decision-Making in Special Ed

2016-11-10T10:12:12-05:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, education, ESE, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

Last month, I wrote an article for Special Education Advisor,

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Report: Disabled Face Transportation Barriers

2016-11-10T10:12:12-05:00By Ollibean|Categories: Advocacy, Articles, General, Politics|Tags: ADA, all disabilities, Americans with Disabilities Act, cerebral palsy, muscular dystrophies, spinal muscular atrophy, Transportation|

WASHINGTON, DC -- Two civil rights organizations are highlighting disparities

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Videos games as therapy?

2016-11-10T10:12:12-05:00By Cody Lawson|Categories: blog, Cody Lawson, Editor's Picks|Tags: all, all disabilities, Autism Spectrum Disorder, Autism Spectrum Disorders, cerebral palsy, Children's Hospital of Philadelphia, Cody Lawson, developmental disabilities, developmental disability, down syndrome, exercise, medically fragile, mitochondrial disorders, muscular dystrophies, Nintendo Wii, physical therapy, Playstation Move, rare or undiagnosed disorder, rehabilitation, spinal muscular atrophy, therapy, video games, Wii, Xbox 360 Kinect|

Video games may not be as bad for us as our mothers told us. The latest foray into the virtual realm stems from the Archives of Physical Medicine and Rehabilitation, citing that targeted rehabilitation of patients with Cerebral Palsy can be achieved through the use of active video games (Nintendo Wii, Xbox 360 Kinect, Playstation Move, etc.).

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Are charter schools bad at special ed?

2012-05-29T22:42:37-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, education, ESE, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

Critics say public charter schools have an unfair advantage over

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Does “Eligible for Special Ed” Mean an IEP?

2012-05-28T22:11:59-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: 504 Plan, all disabilities, cerebral palsy, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

My 15 year old daughter was determined eligible for special

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Helping Special Education Students, and Paying With His Career

2012-05-28T22:17:15-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, education, ESE, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

There was no particular moment when Harris Lirtzman decided to

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Assistive Technology – What is UDL, NIMAS, and AIM?

2012-05-28T22:20:07-04:00By Ollibean|Categories: Articles, Assistive Technology, General, Inclusive Education|Tags: all disabilities, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, epilepsy, hearing impairment, IEP, Individualized Education Plan, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

The National Instructional Materials Accessibility Standard (NIMAS) creates a national

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iPad gives voice to kids with autism

2016-11-10T10:12:12-05:00By Ollibean|Categories: Articles, Assistive Technology, General|Tags: all disabilities, assistive technology, AT, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

Sharia Siddiqui uses an iPad to help her communicate. Her

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Thank you to the best beta testers on the planet

2016-11-10T10:12:12-05:00By Ollibean|Categories: blog, Editor's Picks, General|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, Food allergies, hearing impairment, learning disabilities, mitochondrial disorders, muscular dystrophies, Ollibean, Ollibean Beta, rare or undiagnosed disorders, spinal muscular atrophy|

We appreciate the excellent feedback, and are making changes based on the input from our incredible and highly intelligent group of Beta Testers ( parents, kids living with diffability, self-advocates, therapists, educators, physicians, and freedom fighters) Hang on, fasten your seat belts, it might be a little bumpy along the way, but it will be worth it, we promise.

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Comparing General Education to Special Education: What are the Differences?

2012-05-03T08:44:31-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, education, ESE, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

Students with autism are educated in a variety of settings

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Disability photography: Changing the world one photograph at a time

2016-11-10T10:12:12-05:00By Ollibean|Categories: Articles, General, Lifestyle|Tags: all disabilities, cerebral palsy, Emily Alecock, mitochondrial disorders, muscular dystrophies, photography, spinal muscular atrophy|

Researching the subject, I quickly realised that the majority of

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Parents Wire Kids To Prove Teachers’ Verbal Abuse

2012-12-16T10:17:31-05:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: abuse, all disabilities, all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, education, ESE, hearing impairment, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

CHERRY HILL, N.J. (AP) — Teachers hurled insults like "bastard,"

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U.S. Department of Education Reaches Agreement with School District on Services for Students with Disabilities

2012-04-27T06:29:38-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, DOE, down syndrome, education, ESE, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, OCR, rare or undiagnosed disorders, spinal muscular atrophy|

The U.S. Department of Education announced today that its Office

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Working to Give All Students the Ability to Succeed

2012-04-26T19:13:37-04:00By Ollibean|Categories: Articles, General, Inclusive Education|Tags: all disabilities, Autism Spectrum Disorders, cerebral palsy, developmental disabilities, down syndrome, education, ESE, hearing impairment, learning disabilities, medically fragile, mitochondrial disorders, muscular dystrophies, rare or undiagnosed disorders, spinal muscular atrophy|

Tech-Now, Inc. is one of the many organizations across the

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Facebook blocks NC mom’s pictures of Special Olympics event

2016-11-10T10:12:12-05:00By Ollibean|Categories: Advocacy, blog, Editor's Picks, General, Lifestyle, Parenting, Think Tank|Tags: all disabilities, all kids, Attention Deficit Disorders, Autism Spectrum Disorder, cerebral palsy, developmental disability, down syndrome, Facebook, hearing impairment, learning disabilities, medically complex, Mitochondrial Disorder, muscular dystrophies, rare or undiagnosed disorder, special olympics, spinal muscular atrophy|

Diane Cornwell said her seven year old, Cole, who happens to have Down Syndrome had a great time at his first Special Olympics event last Friday. She uploaded an album of 40 pictures to share and says Facebook blocked it for inappropriate content and locked her account.

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