Stephen P. Spielberg, M.D., Ph.D., FDA’s deputy commissioner for medical products and tobacco, talks about lessons learned from the study of rare diseases. Patients often need advocates, and that can be especially true for people with a rare disease, who
Helping Rare Disease Patients Find Their Voice
About the Author: Ollibean
Ollibean is a dynamic community of parents, families and advocates in the disability community working together for a more socially just, accessible and inclusive world.
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