The Foundation for Mitochondrial Medicine is pleased to announce its second annual Hope Flies: Walk for Abby on Saturday, April 21, 2012. All proceeds from the event will support the development of research and treatments for the many forms of mitochondrial disease. We look forward to seeing you for this fun, family-friendly evene. We look forward to seeing you for this fun, family-friendly event.
In Honor of Abby Sauerhoefer
Date: Saturday, April 21, 2012
Time: Sign-in at 8:30 a.m.; walk starts at 10:00 a.m.
Location: Broad Brook Elementary School, 14 Rye Street
Four year old Abby Sauerhoefer attends preschool at Broad Brook Elementary. Abby has struggled with breathing and feeding issues from birth. By two months, we knew something was terribly wrong when she started having frequent, uncontrolled movements of her arms and legs. We learned that these episodes were infantile spasms or seizures. Extensive testing and treatments led to a diagnosis in July 2009 of a mitochondrial disorder. Along with daily seizures, this disorder does not allow her
to walk, speak, or sit up, and her only means of nourishment is through a feeding tube. Seizures are managed, but not completely eliminated, with medication and diet. Although Abby is not able to talk, she expresses her emotions through “Abby songs”. She loves music and enjoys the company of other children. She moves around by rolling or using a stroller. We are hopeful that the foundation will find new treatments to help Abby and appreciate your support in finding a cure!
For More Information
Contact Carol Sauerhoefer or call 860-627-5119.