1) Read Jim Sinclair’s “Don’t Mourn for Us”.
2) Tell your parents, family and friends that are close (maybe even your boss) about your child’s diagnosis, as you are going to need support.
3) Let go of any preconceived ideas for birthday parties, trips to the supermarket and vacations. Don’t worry if an event doesn’t turn out exactly as planned. Sometimes the unexpected is just as wonderful.
4) Discover what motivates your child and learn as much as you can about those topics.
5) Figure out the best way to communicate with your child. Whether through speech, sign language, PECS, facilitated communication or touch, finding a way to “talk” with your child reduces everyone’s stress.