Rare disorders Archives • Ollibean

Addi & Cassi Fund

2013-06-17T15:15:41-04:00By dbisset|Categories: General, Medical, Resources|Tags: addiandcassi, all disabilities, Childhood Alzheimer’s, Niemann-Pick Type C, NPC, Rare disorders, rare or undiagnosed disorder, rare or undiagnosed disorders, resources|

Our names are Addison and Cassidy Hempel and we are

0

Office of Rare Diseases

2013-06-17T15:46:53-04:00By Ollibean|Categories: General, Medical, Resources|Tags: all disabilities, mitochondrial disorders, NIH, ORDR, Rare disorders, rare or undiagnosed disorder, resource, resources|

The ORDR Web site aims to answer questions about rare

0

A Mother’s Determination And Next Generation Sequencing

2016-11-10T10:12:28-05:00By Ollibean|Categories: Articles, Medical|Tags: baylor, cerebral palsy, dopa-responsive dystonia, dystonia, genome, mother, parent, rare disorder, Rare disorders, rare or undiagnosed disorders|

When Noah and Alexis Beery were diagnosed with cerebral palsy at age

0