Cerebral Palsy

Cerebral Palsy2016-11-10T10:11:11-05:00

Interview, blogs, and videos about cerebral palsy from the experts – people with cerebral palsy.  Advocates and families working together to create a more accessible and inclusive world.

On Not Being “Pretty”

My friend Cara wrote this awesome article about being "ugly" disabled. You should click on the link and read it. Go on, I'll wait.   Isn't it great? The article got me thinking.   Like

Five Reasons You Need to Read ‘Ghost Boy’ by Martin Pistorius

For over ten years Martin Pistorius was trapped in his own body, fully cognizant, but unable to speak or move. He was surrounded by people who believed he was incapable of thinking and tried desperately to get just one person to notice. His story serves as a wake-up call for all of us to drastically change our assumptions about speech and intellectual capacity as well as the need to radically reform expectations and treatment of people with complex communication needs.

Why I Don’t Like “Awareness”

Awareness campaigns of disabilities are only effective if they are planned and run primarily by the groups that are the subjects of the campaign. This is because such campaigns are not “awareness”, but “acceptance” campaigns. We welcome support, with focus on respect, equality and access. We don’t need “awareness” of deficits and tragic rhetoric.

Being Disabled and in the Hospital

Being disabled and in hospitals is always scary because our lives is not valued as the lives of non-disabled. I was, in a way, lucky but the policies still need a lot of improvement.

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